Canaan was born December 9, 2017 and just as cute as they come. He was taken directly to NICU 4 where they did an Echo to get a more clear look at his heart. In the first few days in NICU he had a SVT, super ventricular tachycardia, but they stabilized him quickly. He’s continued on medication to keep his heart rate regular. After the echo they felt they could place stents in his PDA valve to keep it open instead of having to do the BT Shunt surgery. His PDA was very twisted and long, needing four stents to cover the entire length of it and the cath procedure took over five hours. Due to the length of the procedure he developed a clot in his leg where they went in and was on Lovonox shots twice a day for three weeks. He did wonderfully though after his procedure and was discharged to go home after just ten days in the NICU. Lauren and Jason continued the shots at home, as well as two other medications. They were going twice a week for Hemotology and Cardiology/Echo visits over the last 7 weeks. Canaan is finally gaining weight at a better pace and his stents, although more narrow than when in NICU, are holding. He is now just going once a week to check on his oxygen saturation levels and have an echo. Normal for him is between 80-85% but he has been hovering around 78%. Depending on how his oxygen holds, there are a few options. If he doesnt drop any further he should be able to make it to his Glenn Surgery which is in the next 2-4 months. 

 

If his oxygen drops any further they may have to do one of the following: 

1) try to balloon the stents open via cath procedure; 

2) do the BT Shunt surgery to get him to his Glenn; 

3) move up his Green Surgery sooner. 

 

The Glenn surgery is a very hefty surgery where they join the Superior Vena Cava to the Right Pulmonary Artery so it goes around the heart abnormalities and gets oxygenated blood straight to the lungs. They typically like babies to be a certain weight to be able to handle the procedure. He was diagnosed with a milk protein allergy and has struggled with reflux so weight gain has been slower but seems to be improving slowly and is still gaining weight which is a huge praise. Right now they are just waiting for the next step and continuing to pray for the best case scenario and for Gods hand to continue to be seen his little life.